January 23, 2009 – From now on the days are counted from the day of the stem cell infusion. Yesterday was day 0.
Jill's white count is now 0.3, which is very low. Her platelet's were 279 and are now 79. The doctor's keep telling her not to worry that all of this is normal. The fluid retention brought her weight up to 133 but now it is 120. She is not eating again because she is very weak. She gets full from just a few bites. All she keeps asking is, "Can I sleep?" Her spirits are up and she is just waiting to feel better. She has to take one day at a time and it will happen. On about day 8 to 12 the new stem cells should engraft. You will know by the blood counts. They will go up dramatically. On day 5 she will have neupogen shots to stimulate the growth of the stem cells.
The only problem seems to be her asthma, but it could be her MS. A swallow study is ordered for Monday.
This study will examine the mechanisms of the throat.
She is having a breathing treatment now and I hope it gets her through the night.
Love to all
Jill and Doreen
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